Foundation Orphan Healthcare

We4Ukraine

Raising Awareness 2022

FOUNDATION

Orphan Healthcare offers direct support to those who are affected and provides comprehensive help. We use targeted campaigns such as Black Nose®️to raise awareness in society and reinforce the attention to the subject of rare diseases. Our main desire is to improve integration and the quality of life of affected children and their families.

By establishing contacts with international experts on the subjects, mediating important points of contact and promoting exchange of information, we support those affected in their often-difficult everyday lives.

Affected people urgently need specific an individual answers and a complete support management after their diagnosis.

There are too few medicines for rare diseases (Orphan Drugs, Orphan Diseases, Rare Diseases). Most of them are so expensive that many health and other insurances refuse to pay for them. Therefore, we take different paths. Developing new medicines or alternative treatments requires ideas, courage to be entrepreneurial and the corresponding partners.

We actively integrated partners and various sources through our development company Orphan Biotec to permit more cost-efficient research and development. Impact investors will play a great role in this in future.

Ideas are the roots of our innovation. Core items of our work are projects that are aligned with the demand of young and old patients, as well as the needs of the market. Those affected need direct help and support at once after diagnosis. They need specific answers and comprehensive support management.

We integrate those affected and those not affected. We give those affected a voice and a face with our BLACK NOSE campaign, which has already acquired international status.

We encourage them to commit to work in their own matters and those of others affected in our health promotional program ELFEN HELFEN.

This creates trust into our own resources, promotes resilience and shows those affected that they are not alone. We need others to create a network that we need to advance.

1 + 1 sometimes makes 3

In order to tackle the central tasks in the area of rare diseases, we have combined two innovative partners – a charity and a social company. Our business model is sustainably aligned this way; when both partners support each other and are more successful together, everyone can profit. Our first social partner is Orphanbiotec AG (direct link to the new website), the first pharmaceutical company in Switzerland with a socially compatible profit claim. Part of the profit from the developed therapies will go to the foundation. Our model has already been awarded 1^st place of the Swiss young entrepreneur’s prize of SEIF in 2011.

Short-term and effective: Qualifying affected families

‘Rare diseases’ become part of a modern and affordable health care system. Those affected quickly receive a diagnosis, affordable therapies and other alternatives. “Rare diseases” will be an integral part of medical research and development in the future.

CALL TO ACTION

The #we4ukraine initiative was created to offer medical assistance to Ukrainian refugees in Zurich.

CHARITY Vernissage

On Saturday the 21.5.2022 the Foundation OrphanHealthcare will held a Charity event and Live Auction in the Fame Gallery in Talstrasse 9. 8001 Zurich.

Foundation OrphanHealthcare
Albisriederstrasse 243a
8047 Zurich – Switzerland

Tram No. 3, Stop SIEMENS

foundation@fohc.ch
Phone: +41 44 680 11 33
Mobile: +41 79 246 50 69

www.orphanhealthcare.org
Photos copyright by: FOCH & Jeannette Johannsen-Evans